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Acute intermittent porphyria is a rare genetic disorder that primarily affects the nervous system. It is characterized by intermittent acute episodes of abdominal, mental and neurological symptoms that appear quickly and usually last a short time.
How do members experience acute intermittent porphyria?
Top 5 symptoms reported by people with acute intermittent porphyria*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for acute intermittent porphyria*
Who has acute intermittent porphyria on PatientsLikeMe?
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Acute intermittent porphyria is a rare genetic disorder that primarily affects the nervous system. It is characterized by intermittent acute episodes of abdominal, mental and neurological symptoms that appear quickly and usually last a short time.
Common symptoms reported by people with acute intermittent porphyria
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for acute intermittent porphyria
Let’s build this page together! When you share what it’s like to have acute intermittent porphyria through your profile, those stories and data appear here too.
Got a question about living with acute intermittent porphyria? Members in the forum might have the answers.
Compare treatments taken by people with acute intermittent porphyria
Let’s build this page together! When you share what it’s like to have acute intermittent porphyria through your profile, those stories and data appear here too.
Got a question about living with acute intermittent porphyria? Members in the forum might have the answers.
Who has acute intermittent porphyria on PatientsLikeMe?
0
new patients joined this month
55
say acute intermittent porphyria is their primary condition