What is alpha 1 antitrypsin deficiency?

Alpha-1 antitrypsin deficiency is an inherited disorder that may cause lung disease and liver disease. People with alpha-1 antitrypsin deficiency usually develop the first signs and symptoms of lung disease between ages 20 and 50.

How do members experience alpha 1 antitrypsin deficiency?

Top 5 symptoms reported by people with alpha 1 antitrypsin deficiency*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for alpha 1 antitrypsin deficiency*

Who has alpha 1 antitrypsin deficiency on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 16
30s 51
40s 42
50s 60
60s 77
70+ 62

Distribution of sex

Sex

Sex Proportion # of patients
Male 99
Female 189

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What is alpha 1 antitrypsin deficiency?

Alpha-1 antitrypsin deficiency is an inherited disorder that may cause lung disease and liver disease. People with alpha-1 antitrypsin deficiency usually develop the first signs and symptoms of lung disease between ages 20 and 50.



Common symptoms reported by people with alpha 1 antitrypsin deficiency

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for alpha 1 antitrypsin deficiency

Let’s build this page together! When you share what it’s like to have alpha 1 antitrypsin deficiency through your profile, those stories and data appear here too.

Got a question about living with alpha 1 antitrypsin deficiency? Members in the forum might have the answers.


Compare treatments taken by people with alpha 1 antitrypsin deficiency

Let’s build this page together! When you share what it’s like to have alpha 1 antitrypsin deficiency through your profile, those stories and data appear here too.

Got a question about living with alpha 1 antitrypsin deficiency? Members in the forum might have the answers.



Who has alpha 1 antitrypsin deficiency on PatientsLikeMe?

  • 0 new patients joined this month
  • 273 say alpha 1 antitrypsin deficiency is their primary condition

Age
Age Proportion # of patients
<20 3
20s 16
30s 51
40s 42
50s 60
60s 77
70+ 62
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 16
30-39 years 13
40-49 years 10
50-59 years 12
60-69 years 5
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 99
Female 189

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 97
Not Diagnosed 12

These charts show data from alpha 1 antitrypsin deficiency patients who have completed their condition history
Last updated: