What is Alport syndrome?

Alport's Syndrome, also known as hereditary nephritis, is a genetic syndrome that affects males more often than females and is associated with progressive renal insufficiency, hearing loss and abnormalities of the eyes.

How do members experience Alport syndrome?

Top 5 symptoms reported by people with Alport syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Alport syndrome*

Who has Alport syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 3
30s 8
40s 9
50s 21
60s 16
70+ 6

Distribution of sex

Sex

Sex Proportion # of patients
Male 32
Female 31

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What is Alport syndrome?

Alport's Syndrome, also known as hereditary nephritis, is a genetic syndrome that affects males more often than females and is associated with progressive renal insufficiency, hearing loss and abnormalities of the eyes.



Common symptoms reported by people with Alport syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Alport syndrome

Let’s build this page together! When you share what it’s like to have Alport syndrome through your profile, those stories and data appear here too.

Got a question about living with Alport syndrome? Members in the forum might have the answers.


Compare treatments taken by people with Alport syndrome

Let’s build this page together! When you share what it’s like to have Alport syndrome through your profile, those stories and data appear here too.

Got a question about living with Alport syndrome? Members in the forum might have the answers.



Who has Alport syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 32 say Alport syndrome is their primary condition

Age
Age Proportion # of patients
<20 1
20s 3
30s 8
40s 9
50s 21
60s 16
70+ 6
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 7
20-29 years 2
30-39 years 0
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 32
Female 31

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 15
Not Diagnosed 1

These charts show data from Alport syndrome patients who have completed their condition history
Last updated: