What is chronic cerebrospinal venous insufficiency?

Chronic cerebrospinal venous insufficiency (CCSVI) is a term used to describe compromised flow of blood in the veins draining the central nervous system.

How do members experience chronic cerebrospinal venous insufficiency?

Top 5 symptoms reported by people with chronic cerebrospinal venous insufficiency*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for chronic cerebrospinal venous insufficiency*

Who has chronic cerebrospinal venous insufficiency on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 5
40s 12
50s 26
60s 25
70+ 17

Distribution of sex

Sex

Sex Proportion # of patients
Male 28
Female 58

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What is chronic cerebrospinal venous insufficiency?

Chronic cerebrospinal venous insufficiency (CCSVI) is a term used to describe compromised flow of blood in the veins draining the central nervous system.



Common symptoms reported by people with chronic cerebrospinal venous insufficiency

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for chronic cerebrospinal venous insufficiency

Let’s build this page together! When you share what it’s like to have chronic cerebrospinal venous insufficiency through your profile, those stories and data appear here too.

Got a question about living with chronic cerebrospinal venous insufficiency? Members in the forum might have the answers.


Compare treatments taken by people with chronic cerebrospinal venous insufficiency

Let’s build this page together! When you share what it’s like to have chronic cerebrospinal venous insufficiency through your profile, those stories and data appear here too.

Got a question about living with chronic cerebrospinal venous insufficiency? Members in the forum might have the answers.



Who has chronic cerebrospinal venous insufficiency on PatientsLikeMe?

  • 0 new patients joined this month
  • 15 say CCSVI is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 5
40s 12
50s 26
60s 25
70+ 17
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 3
30-39 years 10
40-49 years 3
50-59 years 1
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 28
Female 58

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 30
Not Diagnosed 5

These charts show data from CCSVI patients who have completed their condition history
Last updated: