What is Chiari malformation?

Chiari malformation is a malformation of the brain that causes structural defects in the cerebellum, the part of the brain that controls balance. It can cause headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, and, in severe cases paralysis.

How do members experience Chiari malformation?

Top 5 symptoms reported by people with Chiari malformation*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Chiari malformation*

Who has Chiari malformation on PatientsLikeMe?

Age

Age Proportion # of patients
<20 6
20s 44
30s 111
40s 186
50s 225
60s 107
70+ 31

Distribution of sex

Sex

Sex Proportion # of patients
Male 76
Female 621

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What is Chiari malformation?

Chiari malformation is a malformation of the brain that causes structural defects in the cerebellum, the part of the brain that controls balance. It can cause headaches, fatigue, muscle weakness in the head and face, difficulty swallowing, dizziness, nausea, and, in severe cases paralysis.



Common symptoms reported by people with Chiari malformation

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Chiari malformation

Let’s build this page together! When you share what it’s like to have Chiari malformation through your profile, those stories and data appear here too.

Got a question about living with Chiari malformation? Members in the forum might have the answers.


Compare treatments taken by people with Chiari malformation

Let’s build this page together! When you share what it’s like to have Chiari malformation through your profile, those stories and data appear here too.

Got a question about living with Chiari malformation? Members in the forum might have the answers.



Who has Chiari malformation on PatientsLikeMe?

  • 1 new patients joined this month
  • 410 say Chiari malformation is their primary condition

Age
Age Proportion # of patients
<20 6
20s 44
30s 111
40s 186
50s 225
60s 107
70+ 31
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 94
20-29 years 64
30-39 years 63
40-49 years 31
50-59 years 11
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 76
Female 621

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 358
Not Diagnosed 7

These charts show data from Chiari malformation patients who have completed their condition history
Last updated: