What is dysautonomia?

Dysautonomia is a broad term that describes any disease or malfunction of the autonomic nervous system. It can be local, as in reflex sympathetic dystrophy, or generalized, as in pure autonomic failure. It can be acute and reversible, as in Guillain-Barre syndrome, or chronic and progressive.

How do members experience dysautonomia?

Top 5 symptoms reported by people with dysautonomia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for dysautonomia*

Who has dysautonomia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 15
20s 77
30s 168
40s 170
50s 150
60s 109
70+ 56

Distribution of sex

Sex

Sex Proportion # of patients
Male 73
Female 656

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What is dysautonomia?

Dysautonomia is a broad term that describes any disease or malfunction of the autonomic nervous system. It can be local, as in reflex sympathetic dystrophy, or generalized, as in pure autonomic failure. It can be acute and reversible, as in Guillain-Barre syndrome, or chronic and progressive.



Common symptoms reported by people with dysautonomia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for dysautonomia

Let’s build this page together! When you share what it’s like to have dysautonomia through your profile, those stories and data appear here too.

Got a question about living with dysautonomia? Members in the forum might have the answers.


Compare treatments taken by people with dysautonomia

Let’s build this page together! When you share what it’s like to have dysautonomia through your profile, those stories and data appear here too.

Got a question about living with dysautonomia? Members in the forum might have the answers.



Who has dysautonomia on PatientsLikeMe?

  • 7 new patients joined this month
  • 247 say dysautonomia is their primary condition

Age
Age Proportion # of patients
<20 15
20s 77
30s 168
40s 170
50s 150
60s 109
70+ 56
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 119
20-29 years 64
30-39 years 59
40-49 years 44
50-59 years 20
60-69 years 5
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 73
Female 656

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 337
Not Diagnosed 49

These charts show data from dysautonomia patients who have completed their condition history
Last updated: