What is dystonia?

Dystonia is a neurological movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal posture due to disordered tonicity of muscles. Sustained muscle contraction (dystonia) may be caused by a number of conditions.

How do members experience dystonia?

Top 5 symptoms reported by people with dystonia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for dystonia*

Who has dystonia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 9
20s 21
30s 60
40s 113
50s 127
60s 165
70+ 145

Distribution of sex

Sex

Sex Proportion # of patients
Male 155
Female 475

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What is dystonia?

Dystonia is a neurological movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal posture due to disordered tonicity of muscles. Sustained muscle contraction (dystonia) may be caused by a number of conditions.



Common symptoms reported by people with dystonia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for dystonia

Let’s build this page together! When you share what it’s like to have dystonia through your profile, those stories and data appear here too.

Got a question about living with dystonia? Members in the forum might have the answers.


Compare treatments taken by people with dystonia

Let’s build this page together! When you share what it’s like to have dystonia through your profile, those stories and data appear here too.

Got a question about living with dystonia? Members in the forum might have the answers.



Who has dystonia on PatientsLikeMe?

  • 3 new patients joined this month
  • 260 say dystonia is their primary condition

Age
Age Proportion # of patients
<20 9
20s 21
30s 60
40s 113
50s 127
60s 165
70+ 145
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 51
20-29 years 31
30-39 years 48
40-49 years 50
50-59 years 39
60-69 years 15
70+ years 5

Distribution of sex

Sex
Sex Proportion # of patients
Male 155
Female 475

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 264
Not Diagnosed 28

These charts show data from dystonia patients who have completed their condition history
Last updated: