What is facioscapulohumeral muscular dystrophy?

Facioscapulohumeral muscular dystrophy An autosomal dominant disorder affecting the skeletal muscles of the face, scapula, and upper arm characterized by muscle weakness in these anatomic areas. The muscle weakness eventually spreads to other skeletal muscles as well.

How do members experience facioscapulohumeral muscular dystrophy?

Top 5 symptoms reported by people with facioscapulohumeral muscular dystrophy*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for facioscapulohumeral muscular dystrophy*

Who has facioscapulohumeral muscular dystrophy on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 3
30s 13
40s 9
50s 11
60s 12
70+ 20

Distribution of sex

Sex

Sex Proportion # of patients
Male 34
Female 40

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What is facioscapulohumeral muscular dystrophy?

Facioscapulohumeral muscular dystrophy An autosomal dominant disorder affecting the skeletal muscles of the face, scapula, and upper arm characterized by muscle weakness in these anatomic areas. The muscle weakness eventually spreads to other skeletal muscles as well.



Common symptoms reported by people with facioscapulohumeral muscular dystrophy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for facioscapulohumeral muscular dystrophy

Let’s build this page together! When you share what it’s like to have facioscapulohumeral muscular dystrophy through your profile, those stories and data appear here too.

Got a question about living with facioscapulohumeral muscular dystrophy? Members in the forum might have the answers.


Compare treatments taken by people with facioscapulohumeral muscular dystrophy

Let’s build this page together! When you share what it’s like to have facioscapulohumeral muscular dystrophy through your profile, those stories and data appear here too.

Got a question about living with facioscapulohumeral muscular dystrophy? Members in the forum might have the answers.



Who has facioscapulohumeral muscular dystrophy on PatientsLikeMe?

  • 0 new patients joined this month
  • 71 say facioscapulohumeral muscular dystrophy is their primary condition

Age
Age Proportion # of patients
<20 2
20s 3
30s 13
40s 9
50s 11
60s 12
70+ 20
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 19
20-29 years 3
30-39 years 5
40-49 years 1
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 34
Female 40

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 34
Not Diagnosed 1

These charts show data from facioscapulohumeral muscular dystrophy patients who have completed their condition history
Last updated: