What is glycogen storage disease?

Glycogen storage disease is an inherited disorder caused by the buildup of a complex sugar called glycogen in the body's cells. The accumulation of glycogen in certain organs and tissues, especially the liver, kidneys, and small intestines, impairs their ability to function normally.

How do members experience glycogen storage disease?

Top 5 symptoms reported by people with glycogen storage disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for glycogen storage disease*

Who has glycogen storage disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 4
30s 8
40s 8
50s 6
60s 4
70+ 2

Distribution of sex

Sex

Sex Proportion # of patients
Male 14
Female 20

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What is glycogen storage disease?

Glycogen storage disease is an inherited disorder caused by the buildup of a complex sugar called glycogen in the body's cells. The accumulation of glycogen in certain organs and tissues, especially the liver, kidneys, and small intestines, impairs their ability to function normally.



Common symptoms reported by people with glycogen storage disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for glycogen storage disease

Let’s build this page together! When you share what it’s like to have glycogen storage disease through your profile, those stories and data appear here too.

Got a question about living with glycogen storage disease? Members in the forum might have the answers.


Compare treatments taken by people with glycogen storage disease

Let’s build this page together! When you share what it’s like to have glycogen storage disease through your profile, those stories and data appear here too.

Got a question about living with glycogen storage disease? Members in the forum might have the answers.



Who has glycogen storage disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 25 say glycogen storage disease is their primary condition

Age
Age Proportion # of patients
<20 3
20s 4
30s 8
40s 8
50s 6
60s 4
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 1
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 14
Female 20

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 11
Not Diagnosed 0

These charts show data from glycogen storage disease patients who have completed their condition history
Last updated: