What is idiopathic intracranial hypertension?

Idiopathic intracranial hypertension is a neurological condition that causes increased intracranial pressure without the presence of a tumor or deformity to explain the increased pressure in cerebral spinal fluid.

How do members experience idiopathic intracranial hypertension?

Top 5 symptoms reported by people with idiopathic intracranial hypertension*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for idiopathic intracranial hypertension*

Who has idiopathic intracranial hypertension on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 55
30s 157
40s 226
50s 183
60s 72
70+ 16

Distribution of sex

Sex

Sex Proportion # of patients
Male 47
Female 666

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What is idiopathic intracranial hypertension?

Idiopathic intracranial hypertension is a neurological condition that causes increased intracranial pressure without the presence of a tumor or deformity to explain the increased pressure in cerebral spinal fluid.



Common symptoms reported by people with idiopathic intracranial hypertension

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for idiopathic intracranial hypertension

Let’s build this page together! When you share what it’s like to have idiopathic intracranial hypertension through your profile, those stories and data appear here too.

Got a question about living with idiopathic intracranial hypertension? Members in the forum might have the answers.


Compare treatments taken by people with idiopathic intracranial hypertension

Let’s build this page together! When you share what it’s like to have idiopathic intracranial hypertension through your profile, those stories and data appear here too.

Got a question about living with idiopathic intracranial hypertension? Members in the forum might have the answers.



Who has idiopathic intracranial hypertension on PatientsLikeMe?

  • 0 new patients joined this month
  • 407 say idiopathic intracranial hypertension is their primary condition

Age
Age Proportion # of patients
<20 2
20s 55
30s 157
40s 226
50s 183
60s 72
70+ 16
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 58
20-29 years 97
30-39 years 90
40-49 years 24
50-59 years 9
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 47
Female 666

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 338
Not Diagnosed 13

These charts show data from idiopathic intracranial hypertension patients who have completed their condition history
Last updated: