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Langerhans cell histiocytosis, which is also called histiocytosis X, is a condition in which there is an abnormal increase in the number of immune cells called histiocytes. It often affects the whole body. When isolated to the lungs it is known as pulmonary histiocytosis X.
How do members experience Langerhans cell histiocytosis?
Top 5 symptoms reported by people with Langerhans cell histiocytosis*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Langerhans cell histiocytosis*
Who has Langerhans cell histiocytosis on PatientsLikeMe?
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Langerhans cell histiocytosis, which is also called histiocytosis X, is a condition in which there is an abnormal increase in the number of immune cells called histiocytes. It often affects the whole body. When isolated to the lungs it is known as pulmonary histiocytosis X.
Common symptoms reported by people with Langerhans cell histiocytosis
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for Langerhans cell histiocytosis
Let’s build this page together! When you share what it’s like to have Langerhans cell histiocytosis through your profile, those stories and data appear here too.
Got a question about living with Langerhans cell histiocytosis? Members in the forum might have the answers.
Compare treatments taken by people with Langerhans cell histiocytosis
Let’s build this page together! When you share what it’s like to have Langerhans cell histiocytosis through your profile, those stories and data appear here too.
Got a question about living with Langerhans cell histiocytosis? Members in the forum might have the answers.
Who has Langerhans cell histiocytosis on PatientsLikeMe?
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new patients joined this month
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say Langerhans cell histiocytosis is their primary condition