What is Langerhans cell histiocytosis?

Langerhans cell histiocytosis, which is also called histiocytosis X, is a condition in which there is an abnormal increase in the number of immune cells called histiocytes. It often affects the whole body. When isolated to the lungs it is known as pulmonary histiocytosis X.

How do members experience Langerhans cell histiocytosis?

Top 5 symptoms reported by people with Langerhans cell histiocytosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Langerhans cell histiocytosis*

Who has Langerhans cell histiocytosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 4
20s 6
30s 15
40s 13
50s 9
60s 9
70+ 7

Distribution of sex

Sex

Sex Proportion # of patients
Male 24
Female 39

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What is Langerhans cell histiocytosis?

Langerhans cell histiocytosis, which is also called histiocytosis X, is a condition in which there is an abnormal increase in the number of immune cells called histiocytes. It often affects the whole body. When isolated to the lungs it is known as pulmonary histiocytosis X.



Common symptoms reported by people with Langerhans cell histiocytosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Langerhans cell histiocytosis

Let’s build this page together! When you share what it’s like to have Langerhans cell histiocytosis through your profile, those stories and data appear here too.

Got a question about living with Langerhans cell histiocytosis? Members in the forum might have the answers.


Compare treatments taken by people with Langerhans cell histiocytosis

Let’s build this page together! When you share what it’s like to have Langerhans cell histiocytosis through your profile, those stories and data appear here too.

Got a question about living with Langerhans cell histiocytosis? Members in the forum might have the answers.



Who has Langerhans cell histiocytosis on PatientsLikeMe?

  • 0 new patients joined this month
  • 61 say Langerhans cell histiocytosis is their primary condition

Age
Age Proportion # of patients
<20 4
20s 6
30s 15
40s 13
50s 9
60s 9
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 1
30-39 years 2
40-49 years 1
50-59 years 2
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 24
Female 39

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 19
Not Diagnosed 0

These charts show data from Langerhans cell histiocytosis patients who have completed their condition history
Last updated: