What is lichen sclerosus?

Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus.

How do members experience lichen sclerosus?

Top 5 symptoms reported by people with lichen sclerosus*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for lichen sclerosus*

Who has lichen sclerosus on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 15
30s 30
40s 55
50s 83
60s 120
70+ 85

Distribution of sex

Sex

Sex Proportion # of patients
Male 34
Female 348

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What is lichen sclerosus?

Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus.



Common symptoms reported by people with lichen sclerosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for lichen sclerosus

Let’s build this page together! When you share what it’s like to have lichen sclerosus through your profile, those stories and data appear here too.

Got a question about living with lichen sclerosus? Members in the forum might have the answers.


Compare treatments taken by people with lichen sclerosus

Let’s build this page together! When you share what it’s like to have lichen sclerosus through your profile, those stories and data appear here too.

Got a question about living with lichen sclerosus? Members in the forum might have the answers.



Who has lichen sclerosus on PatientsLikeMe?

  • 2 new patients joined this month
  • 254 say lichen sclerosus is their primary condition

Age
Age Proportion # of patients
<20 0
20s 15
30s 30
40s 55
50s 83
60s 120
70+ 85
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 13
20-29 years 9
30-39 years 19
40-49 years 26
50-59 years 26
60-69 years 10
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 34
Female 348

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 127
Not Diagnosed 10

These charts show data from lichen sclerosus patients who have completed their condition history
Last updated: