What is mitochondrial myopathy?

Mitochondrial myopathies are a group of neuromuscular diseases caused by damage to the mitochondria which are small, energy-producing structures that serve as the cells' "power plants."

How do members experience mitochondrial myopathy?

Top 5 symptoms reported by people with mitochondrial myopathy*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for mitochondrial myopathy*

Who has mitochondrial myopathy on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 8
30s 6
40s 21
50s 25
60s 21
70+ 21

Distribution of sex

Sex

Sex Proportion # of patients
Male 34
Female 67

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What is mitochondrial myopathy?

Mitochondrial myopathies are a group of neuromuscular diseases caused by damage to the mitochondria which are small, energy-producing structures that serve as the cells' "power plants."



Common symptoms reported by people with mitochondrial myopathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for mitochondrial myopathy

Let’s build this page together! When you share what it’s like to have mitochondrial myopathy through your profile, those stories and data appear here too.

Got a question about living with mitochondrial myopathy? Members in the forum might have the answers.


Compare treatments taken by people with mitochondrial myopathy

Let’s build this page together! When you share what it’s like to have mitochondrial myopathy through your profile, those stories and data appear here too.

Got a question about living with mitochondrial myopathy? Members in the forum might have the answers.



Who has mitochondrial myopathy on PatientsLikeMe?

  • 1 new patients joined this month
  • 71 say mitochondrial myopathy is their primary condition

Age
Age Proportion # of patients
<20 1
20s 8
30s 6
40s 21
50s 25
60s 21
70+ 21
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 13
20-29 years 6
30-39 years 9
40-49 years 6
50-59 years 2
60-69 years 0
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 34
Female 67

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 42
Not Diagnosed 6

These charts show data from mitochondrial myopathy patients who have completed their condition history
Last updated: