What is myotonia congenita?

Myotonia congenita is a disorder that affects muscles used for movement (skeletal muscles). Beginning in childhood, people with this condition experience bouts of sustained muscle tensing (myotonia) that prevent muscles from relaxing normally.

How do members experience myotonia congenita?

Top 5 symptoms reported by people with myotonia congenita*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for myotonia congenita*

Who has myotonia congenita on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 12
30s 14
40s 13
50s 26
60s 13
70+ 7

Distribution of sex

Sex

Sex Proportion # of patients
Male 41
Female 42

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What is myotonia congenita?

Myotonia congenita is a disorder that affects muscles used for movement (skeletal muscles). Beginning in childhood, people with this condition experience bouts of sustained muscle tensing (myotonia) that prevent muscles from relaxing normally.



Common symptoms reported by people with myotonia congenita

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for myotonia congenita

Let’s build this page together! When you share what it’s like to have myotonia congenita through your profile, those stories and data appear here too.

Got a question about living with myotonia congenita? Members in the forum might have the answers.


Compare treatments taken by people with myotonia congenita

Let’s build this page together! When you share what it’s like to have myotonia congenita through your profile, those stories and data appear here too.

Got a question about living with myotonia congenita? Members in the forum might have the answers.



Who has myotonia congenita on PatientsLikeMe?

  • 0 new patients joined this month
  • 81 say myotonia congenita is their primary condition

Age
Age Proportion # of patients
<20 0
20s 12
30s 14
40s 13
50s 26
60s 13
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 2
30-39 years 1
40-49 years 4
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 41
Female 42

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 21
Not Diagnosed 2

These charts show data from myotonia congenita patients who have completed their condition history
Last updated: