What is pancreatic neuroendocrine tumor?

Pancreatic neuroendocrine tumors are a type of neuroendocrine tumor found in the pancreas. Some tumors are functional, which means they produce excess hormones that can lead to a variety of hormone-related symptoms. There are several types of functional neuroendocrine tumors.

How do members experience pancreatic neuroendocrine tumor?

Top 5 symptoms reported by people with pancreatic neuroendocrine tumor*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for pancreatic neuroendocrine tumor*

Who has pancreatic neuroendocrine tumor on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 7
40s 15
50s 43
60s 52
70+ 61

Distribution of sex

Sex

Sex Proportion # of patients
Male 61
Female 121

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What is pancreatic neuroendocrine tumor?

Pancreatic neuroendocrine tumors are a type of neuroendocrine tumor found in the pancreas. Some tumors are functional, which means they produce excess hormones that can lead to a variety of hormone-related symptoms. There are several types of functional neuroendocrine tumors.



Common symptoms reported by people with pancreatic neuroendocrine tumor

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for pancreatic neuroendocrine tumor

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Compare treatments taken by people with pancreatic neuroendocrine tumor

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Who has pancreatic neuroendocrine tumor on PatientsLikeMe?

  • 0 new patients joined this month
  • 165 say PNET is their primary condition

Age
Age Proportion # of patients
<20 0
20s 1
30s 7
40s 15
50s 43
60s 52
70+ 61
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 3
30-39 years 2
40-49 years 4
50-59 years 6
60-69 years 3
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 61
Female 121

Types
Condition Types Proportion # of patients
ACTHoma 0
Gastrinoma 2
Glucagonoma 1
GRFoma 0
Insulinoma 5
Somatostatinoma 2
VIPoma 2
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 32
Not Diagnosed 0

These charts show data from PNET patients who have completed their condition history
Last updated: