What is chronic pelvic pain syndrome?

Chronic pelvic pain is pain to the area below the belly button encompassing the sex organs. The cause of the pain is varied and can be related to injury to the nerves and muscles in the area or related to underlying conditions such as endometriosis, ovarian cysts, urinary tract infections, etc.

How do members experience chronic pelvic pain syndrome?

Top 5 symptoms reported by people with chronic pelvic pain syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for chronic pelvic pain syndrome*

Who has chronic pelvic pain syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 26
30s 64
40s 97
50s 116
60s 95
70+ 41

Distribution of sex

Sex

Sex Proportion # of patients
Male 118
Female 319

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What is chronic pelvic pain syndrome?

Chronic pelvic pain is pain to the area below the belly button encompassing the sex organs. The cause of the pain is varied and can be related to injury to the nerves and muscles in the area or related to underlying conditions such as endometriosis, ovarian cysts, urinary tract infections, etc.



Common symptoms reported by people with chronic pelvic pain syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for chronic pelvic pain syndrome

Let’s build this page together! When you share what it’s like to have chronic pelvic pain syndrome through your profile, those stories and data appear here too.

Got a question about living with chronic pelvic pain syndrome? Members in the forum might have the answers.


Compare treatments taken by people with chronic pelvic pain syndrome

Let’s build this page together! When you share what it’s like to have chronic pelvic pain syndrome through your profile, those stories and data appear here too.

Got a question about living with chronic pelvic pain syndrome? Members in the forum might have the answers.



Who has chronic pelvic pain syndrome on PatientsLikeMe?

  • 2 new patients joined this month
  • 229 say chronic pelvic pain syndrome is their primary condition

Age
Age Proportion # of patients
<20 0
20s 26
30s 64
40s 97
50s 116
60s 95
70+ 41
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 19
20-29 years 37
30-39 years 38
40-49 years 19
50-59 years 11
60-69 years 6
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 118
Female 319

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 141
Not Diagnosed 32

These charts show data from chronic pelvic pain syndrome patients who have completed their condition history
Last updated: