What is polycystic kidney disease?

A genetic disorder characterized by cysts in the kidneys. The more common type is autosomal dominant trait and usually appears at middle age. Patients with the autosomal recessive trait type present with progressive renal failure early in life.

How do members experience polycystic kidney disease?

Top 5 symptoms reported by people with polycystic kidney disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for polycystic kidney disease*

Who has polycystic kidney disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 7
20s 20
30s 62
40s 131
50s 196
60s 220
70+ 132

Distribution of sex

Sex

Sex Proportion # of patients
Male 244
Female 506

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What is polycystic kidney disease?

A genetic disorder characterized by cysts in the kidneys. The more common type is autosomal dominant trait and usually appears at middle age. Patients with the autosomal recessive trait type present with progressive renal failure early in life.



Common symptoms reported by people with polycystic kidney disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for polycystic kidney disease

Let’s build this page together! When you share what it’s like to have polycystic kidney disease through your profile, those stories and data appear here too.

Got a question about living with polycystic kidney disease? Members in the forum might have the answers.


Compare treatments taken by people with polycystic kidney disease

Let’s build this page together! When you share what it’s like to have polycystic kidney disease through your profile, those stories and data appear here too.

Got a question about living with polycystic kidney disease? Members in the forum might have the answers.



Who has polycystic kidney disease on PatientsLikeMe?

  • 3 new patients joined this month
  • 428 say polycystic kidney disease is their primary condition

Age
Age Proportion # of patients
<20 7
20s 20
30s 62
40s 131
50s 196
60s 220
70+ 132
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 44
20-29 years 51
30-39 years 28
40-49 years 24
50-59 years 10
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 244
Female 506

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 250
Not Diagnosed 9

These charts show data from polycystic kidney disease patients who have completed their condition history
Last updated: