What is Prader-Willi syndrome?

Prader-Willi syndrome is a complex genetic disorder characterized by weak muscle tone, poor growth and delayed development. It causes a constant feeling of hunger that leads to chronic overeating and obesity.

How do members experience Prader-Willi syndrome?

Top 5 symptoms reported by people with Prader-Willi syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Prader-Willi syndrome*

Who has Prader-Willi syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 4
20s 11
30s 6
40s 2
50s 1
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 8
Female 15

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What is Prader-Willi syndrome?

Prader-Willi syndrome is a complex genetic disorder characterized by weak muscle tone, poor growth and delayed development. It causes a constant feeling of hunger that leads to chronic overeating and obesity.



Common symptoms reported by people with Prader-Willi syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Prader-Willi syndrome

Let’s build this page together! When you share what it’s like to have Prader-Willi syndrome through your profile, those stories and data appear here too.

Got a question about living with Prader-Willi syndrome? Members in the forum might have the answers.


Compare treatments taken by people with Prader-Willi syndrome

Let’s build this page together! When you share what it’s like to have Prader-Willi syndrome through your profile, those stories and data appear here too.

Got a question about living with Prader-Willi syndrome? Members in the forum might have the answers.



Who has Prader-Willi syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 27 say Prader-Willi syndrome is their primary condition

Age
Age Proportion # of patients
<20 4
20s 11
30s 6
40s 2
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 8
Female 15

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 0

These charts show data from Prader-Willi syndrome patients who have completed their condition history
Last updated: