What is primary sclerosing cholangitis?

Primary sclerosing cholangitis is a chronic, autoimmune inflammatory liver disorder characterized by narrowing and scarring of the lumen of the bile ducts. It is often seen in patients with ulcerative colitis.

How do members experience primary sclerosing cholangitis?

Top 5 symptoms reported by people with primary sclerosing cholangitis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for primary sclerosing cholangitis*

Who has primary sclerosing cholangitis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 6
30s 23
40s 41
50s 33
60s 35
70+ 16

Distribution of sex

Sex

Sex Proportion # of patients
Male 65
Female 90

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What is primary sclerosing cholangitis?

Primary sclerosing cholangitis is a chronic, autoimmune inflammatory liver disorder characterized by narrowing and scarring of the lumen of the bile ducts. It is often seen in patients with ulcerative colitis.



Common symptoms reported by people with primary sclerosing cholangitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for primary sclerosing cholangitis

Let’s build this page together! When you share what it’s like to have primary sclerosing cholangitis through your profile, those stories and data appear here too.

Got a question about living with primary sclerosing cholangitis? Members in the forum might have the answers.


Compare treatments taken by people with primary sclerosing cholangitis

Let’s build this page together! When you share what it’s like to have primary sclerosing cholangitis through your profile, those stories and data appear here too.

Got a question about living with primary sclerosing cholangitis? Members in the forum might have the answers.



Who has primary sclerosing cholangitis on PatientsLikeMe?

  • 0 new patients joined this month
  • 100 say primary sclerosing cholangitis is their primary condition

Age
Age Proportion # of patients
<20 1
20s 6
30s 23
40s 41
50s 33
60s 35
70+ 16
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 14
30-39 years 8
40-49 years 8
50-59 years 2
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 65
Female 90

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 72
Not Diagnosed 4

These charts show data from primary sclerosing cholangitis patients who have completed their condition history
Last updated: