What is pyroluria syndrome?

Pyroluria Syndrome is characterized as an abnormality in hemoglobin synthesis resulting in an excretion of pyrrole compound in the urine. This may be associated with other mental and physical conditions. There is a lack of agreement about this condition within the medical community.

How do members experience pyroluria syndrome?

Top 5 symptoms reported by people with pyroluria syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for pyroluria syndrome*

Who has pyroluria syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 2
40s 3
50s 2
60s 1
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 2
Female 7

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What is pyroluria syndrome?

Pyroluria Syndrome is characterized as an abnormality in hemoglobin synthesis resulting in an excretion of pyrrole compound in the urine. This may be associated with other mental and physical conditions. There is a lack of agreement about this condition within the medical community.



Common symptoms reported by people with pyroluria syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for pyroluria syndrome

Let’s build this page together! When you share what it’s like to have pyroluria syndrome through your profile, those stories and data appear here too.

Got a question about living with pyroluria syndrome? Members in the forum might have the answers.


Compare treatments taken by people with pyroluria syndrome

Let’s build this page together! When you share what it’s like to have pyroluria syndrome through your profile, those stories and data appear here too.

Got a question about living with pyroluria syndrome? Members in the forum might have the answers.



Who has pyroluria syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 3 say pyroluria syndrome is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 2
40s 3
50s 2
60s 1
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 1
30-39 years 1
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 7

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 1

These charts show data from pyroluria syndrome patients who have completed their condition history
Last updated: