What is radiation fibrosis syndrome?

Radiation fibrosis syndrome occurs as a result of radiation therapy. Radiation can cause the abnormal production of the protein, fibrin, which accumulates in and damages the tissue in the area that received radiation.

How do members experience radiation fibrosis syndrome?

Top 5 symptoms reported by people with radiation fibrosis syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for radiation fibrosis syndrome*

Who has radiation fibrosis syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 1
40s 2
50s 18
60s 24
70+ 20

Distribution of sex

Sex

Sex Proportion # of patients
Male 19
Female 46

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is radiation fibrosis syndrome?

Radiation fibrosis syndrome occurs as a result of radiation therapy. Radiation can cause the abnormal production of the protein, fibrin, which accumulates in and damages the tissue in the area that received radiation.



Common symptoms reported by people with radiation fibrosis syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for radiation fibrosis syndrome

Let’s build this page together! When you share what it’s like to have radiation fibrosis syndrome through your profile, those stories and data appear here too.

Got a question about living with radiation fibrosis syndrome? Members in the forum might have the answers.


Compare treatments taken by people with radiation fibrosis syndrome

Let’s build this page together! When you share what it’s like to have radiation fibrosis syndrome through your profile, those stories and data appear here too.

Got a question about living with radiation fibrosis syndrome? Members in the forum might have the answers.



Who has radiation fibrosis syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 55 say radiation fibrosis syndrome is their primary condition

Age
Age Proportion # of patients
<20 0
20s 1
30s 1
40s 2
50s 18
60s 24
70+ 20
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 3
40-49 years 3
50-59 years 6
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 19
Female 46

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 10
Not Diagnosed 3

These charts show data from radiation fibrosis syndrome patients who have completed their condition history
Last updated: