What is retinitis pigmentosa?

Retinitis pigmentosa refers to a group of inherited diseases causing retinal degeneration and eventually blindness. There are multiple genes that, when mutated, can cause the Retinitis pigmentosa.

How do members experience retinitis pigmentosa?

Top 5 symptoms reported by people with retinitis pigmentosa*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for retinitis pigmentosa*

Who has retinitis pigmentosa on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 4
30s 21
40s 29
50s 22
60s 16
70+ 10

Distribution of sex

Sex

Sex Proportion # of patients
Male 52
Female 52

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What is retinitis pigmentosa?

Retinitis pigmentosa refers to a group of inherited diseases causing retinal degeneration and eventually blindness. There are multiple genes that, when mutated, can cause the Retinitis pigmentosa.



Common symptoms reported by people with retinitis pigmentosa

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for retinitis pigmentosa

Let’s build this page together! When you share what it’s like to have retinitis pigmentosa through your profile, those stories and data appear here too.

Got a question about living with retinitis pigmentosa? Members in the forum might have the answers.


Compare treatments taken by people with retinitis pigmentosa

Let’s build this page together! When you share what it’s like to have retinitis pigmentosa through your profile, those stories and data appear here too.

Got a question about living with retinitis pigmentosa? Members in the forum might have the answers.



Who has retinitis pigmentosa on PatientsLikeMe?

  • 1 new patients joined this month
  • 89 say retinitis pigmentosa is their primary condition

Age
Age Proportion # of patients
<20 2
20s 4
30s 21
40s 29
50s 22
60s 16
70+ 10
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 5
30-39 years 9
40-49 years 1
50-59 years 2
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 52
Female 52

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 34
Not Diagnosed 0

These charts show data from retinitis pigmentosa patients who have completed their condition history
Last updated: