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Rett syndrome, a neurodevelopmental disorder that affects girls almost exclusively, is characterized by normal early growth and development followed by a slowing of development, distinctive hand movements, slowed brain and head growth, problems with walking, seizures and intellectual disability.
How do members experience Rett syndrome?
Top 5 symptoms reported by people with Rett syndrome*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Rett syndrome, a neurodevelopmental disorder that affects girls almost exclusively, is characterized by normal early growth and development followed by a slowing of development, distinctive hand movements, slowed brain and head growth, problems with walking, seizures and intellectual disability.
Common symptoms reported by people with Rett syndrome
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for Rett syndrome
Let’s build this page together! When you share what it’s like to have Rett syndrome through your profile, those stories and data appear here too.
Got a question about living with Rett syndrome? Members in the forum might have the answers.
Compare treatments taken by people with Rett syndrome
Let’s build this page together! When you share what it’s like to have Rett syndrome through your profile, those stories and data appear here too.
Got a question about living with Rett syndrome? Members in the forum might have the answers.