What is sickle cell disease?

Sickle cell disease is an inherited blood disorder that affects red blood cells (RBC), which contain mostly hemoglobin S, an abnormal type of hemoglobin. Sometimes these RBCs become crescent shaped and have difficulty passing through small blood vessels.

How do members experience sickle cell disease?

Top 5 symptoms reported by people with sickle cell disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for sickle cell disease*

Who has sickle cell disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 7
20s 31
30s 54
40s 42
50s 32
60s 12
70+ 7

Distribution of sex

Sex

Sex Proportion # of patients
Male 63
Female 121

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What is sickle cell disease?

Sickle cell disease is an inherited blood disorder that affects red blood cells (RBC), which contain mostly hemoglobin S, an abnormal type of hemoglobin. Sometimes these RBCs become crescent shaped and have difficulty passing through small blood vessels.



Common symptoms reported by people with sickle cell disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for sickle cell disease

Let’s build this page together! When you share what it’s like to have sickle cell disease through your profile, those stories and data appear here too.

Got a question about living with sickle cell disease? Members in the forum might have the answers.


Compare treatments taken by people with sickle cell disease

Let’s build this page together! When you share what it’s like to have sickle cell disease through your profile, those stories and data appear here too.

Got a question about living with sickle cell disease? Members in the forum might have the answers.



Who has sickle cell disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 185 say sickle cell disease is their primary condition

Age
Age Proportion # of patients
<20 7
20s 31
30s 54
40s 42
50s 32
60s 12
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 31
20-29 years 3
30-39 years 2
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 63
Female 121

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48
Not Diagnosed 2

These charts show data from sickle cell disease patients who have completed their condition history
Last updated: