What is thalassemia?

Thalassemia anemia is a genetic condition where your body has problems making (hemoglobin) the protein in red blood cells that carries oxygen through your body. This type of anemia is usually affects people with Mediterranean and Asian ancestry.

How do members experience thalassemia?

Top 5 symptoms reported by people with thalassemia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for thalassemia*

Who has thalassemia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 13
30s 25
40s 33
50s 22
60s 6
70+ 7

Distribution of sex

Sex

Sex Proportion # of patients
Male 28
Female 76

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What is thalassemia?

Thalassemia anemia is a genetic condition where your body has problems making (hemoglobin) the protein in red blood cells that carries oxygen through your body. This type of anemia is usually affects people with Mediterranean and Asian ancestry.



Common symptoms reported by people with thalassemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for thalassemia

Let’s build this page together! When you share what it’s like to have thalassemia through your profile, those stories and data appear here too.

Got a question about living with thalassemia? Members in the forum might have the answers.


Compare treatments taken by people with thalassemia

Let’s build this page together! When you share what it’s like to have thalassemia through your profile, those stories and data appear here too.

Got a question about living with thalassemia? Members in the forum might have the answers.



Who has thalassemia on PatientsLikeMe?

  • 2 new patients joined this month
  • 56 say thalassemia is their primary condition

Age
Age Proportion # of patients
<20 1
20s 13
30s 25
40s 33
50s 22
60s 6
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 13
20-29 years 6
30-39 years 4
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 28
Female 76

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33
Not Diagnosed 6

These charts show data from thalassemia patients who have completed their condition history
Last updated: