What is torticollis?

Torticollis is involuntary tonic contractions or intermittent spasms of neck muscles causing the neck to turn from its usual position. It can be present at birth (congenital), inherited or develop as a result of damage to the nervous system or muscles.

How do members experience torticollis?

Top 5 symptoms reported by people with torticollis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for torticollis*

Who has torticollis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 1
30s 15
40s 23
50s 29
60s 58
70+ 32

Distribution of sex

Sex

Sex Proportion # of patients
Male 30
Female 129

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What is torticollis?

Torticollis is involuntary tonic contractions or intermittent spasms of neck muscles causing the neck to turn from its usual position. It can be present at birth (congenital), inherited or develop as a result of damage to the nervous system or muscles.



Common symptoms reported by people with torticollis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for torticollis

Let’s build this page together! When you share what it’s like to have torticollis through your profile, those stories and data appear here too.

Got a question about living with torticollis? Members in the forum might have the answers.


Compare treatments taken by people with torticollis

Let’s build this page together! When you share what it’s like to have torticollis through your profile, those stories and data appear here too.

Got a question about living with torticollis? Members in the forum might have the answers.



Who has torticollis on PatientsLikeMe?

  • 0 new patients joined this month
  • 73 say torticollis is their primary condition

Age
Age Proportion # of patients
<20 3
20s 1
30s 15
40s 23
50s 29
60s 58
70+ 32

Distribution of sex

Sex
Sex Proportion # of patients
Male 30
Female 129

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 90
Not Diagnosed 2

These charts show data from torticollis patients who have completed their condition history
Last updated: