What is Turner's syndrome?

Turner's syndrome is a rare genetic disorder where females are born with one of the two X chromosomes partly or completely missing. This disorder is characterized by underdeveloped sexual organs and various physical abnormalities that can include a short stature, webbed neck and a broad chest.

How do members experience Turner's syndrome?

Top 5 symptoms reported by people with Turner's syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Turner's syndrome*

Who has Turner's syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 12
30s 10
40s 10
50s 4
60s 4
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 2
Female 41

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What is Turner's syndrome?

Turner's syndrome is a rare genetic disorder where females are born with one of the two X chromosomes partly or completely missing. This disorder is characterized by underdeveloped sexual organs and various physical abnormalities that can include a short stature, webbed neck and a broad chest.



Common symptoms reported by people with Turner's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Turner's syndrome

Let’s build this page together! When you share what it’s like to have Turner's syndrome through your profile, those stories and data appear here too.

Got a question about living with Turner's syndrome? Members in the forum might have the answers.


Compare treatments taken by people with Turner's syndrome

Let’s build this page together! When you share what it’s like to have Turner's syndrome through your profile, those stories and data appear here too.

Got a question about living with Turner's syndrome? Members in the forum might have the answers.



Who has Turner's syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 36 say Turner's syndrome is their primary condition

Age
Age Proportion # of patients
<20 3
20s 12
30s 10
40s 10
50s 4
60s 4
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 0
30-39 years 1
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 41

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 11
Not Diagnosed 0

These charts show data from Turner's syndrome patients who have completed their condition history
Last updated: