What is von Willebrand disease?

von Willebrand disease is an hereditary or acquired bleeding disorder characterized by a deficiency of the von Willebrand factor resulting in platelet dysfunction. The von Willebrand factor plays an important role in blood clotting.

How do members experience von Willebrand disease?

Top 5 symptoms reported by people with von Willebrand disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for von Willebrand disease*

Who has von Willebrand disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 4
20s 13
30s 23
40s 24
50s 25
60s 21
70+ 10

Distribution of sex

Sex

Sex Proportion # of patients
Male 16
Female 103

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What is von Willebrand disease?

von Willebrand disease is an hereditary or acquired bleeding disorder characterized by a deficiency of the von Willebrand factor resulting in platelet dysfunction. The von Willebrand factor plays an important role in blood clotting.



Common symptoms reported by people with von Willebrand disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for von Willebrand disease

Let’s build this page together! When you share what it’s like to have von Willebrand disease through your profile, those stories and data appear here too.

Got a question about living with von Willebrand disease? Members in the forum might have the answers.


Compare treatments taken by people with von Willebrand disease

Let’s build this page together! When you share what it’s like to have von Willebrand disease through your profile, those stories and data appear here too.

Got a question about living with von Willebrand disease? Members in the forum might have the answers.



Who has von Willebrand disease on PatientsLikeMe?

  • 2 new patients joined this month
  • 55 say von Willebrand disease is their primary condition

Age
Age Proportion # of patients
<20 4
20s 13
30s 23
40s 24
50s 25
60s 21
70+ 10
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 35
20-29 years 8
30-39 years 5
40-49 years 5
50-59 years 0
60-69 years 1
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 16
Female 103

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 64
Not Diagnosed 5

These charts show data from von Willebrand disease patients who have completed their condition history
Last updated: