What is X-linked hypophosphatemia?

X linked hypophosphatemia is a disorder of low levels of phosphate in the blood. Phosphate is an essential mineral for formation of bones and teeth and helps with bone strength. This is a gene mutation in the PHEX gene.

How do members experience X-linked hypophosphatemia?

Top 5 symptoms reported by people with X-linked hypophosphatemia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for X-linked hypophosphatemia*

Who has X-linked hypophosphatemia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 4
40s 3
50s 3
60s 6
70+ 2

Distribution of sex

Sex

Sex Proportion # of patients
Male 6
Female 11

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What is X-linked hypophosphatemia?

X linked hypophosphatemia is a disorder of low levels of phosphate in the blood. Phosphate is an essential mineral for formation of bones and teeth and helps with bone strength. This is a gene mutation in the PHEX gene.



Common symptoms reported by people with X-linked hypophosphatemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for X-linked hypophosphatemia

Let’s build this page together! When you share what it’s like to have X-linked hypophosphatemia through your profile, those stories and data appear here too.

Got a question about living with X-linked hypophosphatemia? Members in the forum might have the answers.


Compare treatments taken by people with X-linked hypophosphatemia

Let’s build this page together! When you share what it’s like to have X-linked hypophosphatemia through your profile, those stories and data appear here too.

Got a question about living with X-linked hypophosphatemia? Members in the forum might have the answers.



Who has X-linked hypophosphatemia on PatientsLikeMe?

  • 0 new patients joined this month
  • 17 say X-linked hypophosphatemia is their primary condition

Age
Age Proportion # of patients
<20 0
20s 1
30s 4
40s 3
50s 3
60s 6
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 6
Female 11

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6
Not Diagnosed 3

These charts show data from X-linked hypophosphatemia patients who have completed their condition history
Last updated: