What is antiphospholipid antibody syndrome?

Antiphospholipid syndrome, Hughes syndrome, or antiphospholipid antibody syndrome is a disorder that causes blood clots (thrombosis) to form in the arteries, veins, and vital organs.

How do members experience antiphospholipid antibody syndrome?

Top 5 symptoms reported by people with antiphospholipid antibody syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for antiphospholipid antibody syndrome*

*Data from patients with antiphospholipid antibody syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with antiphospholipid antibody syndrome*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Coumadin)
Perceived effectiveness
for antiphospholipid antibody syndrome (2 evaluations)
Side effects
Total evaluations
2
Tried for
antiphospholipid antibody syndrome (3)
Treatment

(Lovenox)
Perceived effectiveness
for antiphospholipid antibody syndrome (2 evaluations)
Side effects
Total evaluations
2
Tried for
antiphospholipid antibody syndrome (1)

*Data from patients with antiphospholipid antibody syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has antiphospholipid antibody syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 16
30s 90
40s 182
50s 250
60s 168
70+ 79

Distribution of sex

Sex

Sex Proportion # of patients
Male 75
Female 718

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What is antiphospholipid antibody syndrome?

Antiphospholipid syndrome, Hughes syndrome, or antiphospholipid antibody syndrome is a disorder that causes blood clots (thrombosis) to form in the arteries, veins, and vital organs.



Common symptoms reported by people with antiphospholipid antibody syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for antiphospholipid antibody syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Coumadin)
Type
Prescription Drug
How many have tried
330
Treatment name(s)

(Lovenox)
Type
Prescription Drug
How many have tried
129

Data from patients with antiphospholipid antibody syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with antiphospholipid antibody syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Coumadin)
Perceived effectiveness
for antiphospholipid antibody syndrome (2 evaluations)
Side effects
Total evaluations
2
Treatment name(s)

(Lovenox)
Perceived effectiveness
for antiphospholipid antibody syndrome (2 evaluations)
Side effects
Total evaluations
2
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with antiphospholipid antibody syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has antiphospholipid antibody syndrome on PatientsLikeMe?

  • 3 new patients joined this month
  • 384 say antiphospholipid antibody syndrome is their primary condition

Age
Age Proportion # of patients
<20 3
20s 16
30s 90
40s 182
50s 250
60s 168
70+ 79
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 55
20-29 years 107
30-39 years 95
40-49 years 53
50-59 years 17
60-69 years 7
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 75
Female 718

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 465
Not Diagnosed 14

These charts show data from antiphospholipid antibody syndrome patients who have completed their condition history
Last updated: