What is chronic inflammatory demyelinating polyneuropathy?

Chronic inflammatory demyelinating polyradiculoneuropathy is an acquired demyelinating peripheral neuropathy that is thought to be an autoimmune disorder. It is considered the chronic variant of Guillain-Barre syndrome.

How do members experience chronic inflammatory demyelinating polyneuropathy?

Top 5 symptoms reported by people with chronic inflammatory demyelinating polyneuropathy*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for chronic inflammatory demyelinating polyneuropathy*

*Data from patients with chronic inflammatory demyelinating polyneuropathy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with chronic inflammatory demyelinating polyneuropathy*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Gammaglobulin (IVIg))
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (3 evaluations)
Side effects
fluid retention (edema)
Total evaluations
3
Tried for
chronic inflammatory demyelinating polyneuropathy (7)
Treatment

(Neurontin)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
Total evaluations
1
Tried for
chronic inflammatory demyelinating polyneuropathy (2)
Treatment

(Prednisone Intensol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
chronic inflammatory demyelinating polyneuropathy (2)
Treatment

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
chronic inflammatory demyelinating polyneuropathy (1)
Treatment

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
chronic inflammatory demyelinating polyneuropathy (1)

*Data from patients with chronic inflammatory demyelinating polyneuropathy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has chronic inflammatory demyelinating polyneuropathy on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 10
30s 27
40s 63
50s 109
60s 187
70+ 169

Distribution of sex

Sex

Sex Proportion # of patients
Male 222
Female 339

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What is chronic inflammatory demyelinating polyneuropathy?

Chronic inflammatory demyelinating polyradiculoneuropathy is an acquired demyelinating peripheral neuropathy that is thought to be an autoimmune disorder. It is considered the chronic variant of Guillain-Barre syndrome.



Common symptoms reported by people with chronic inflammatory demyelinating polyneuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for chronic inflammatory demyelinating polyneuropathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
255
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
202
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
166
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
76
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
76

Data from patients with chronic inflammatory demyelinating polyneuropathy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with chronic inflammatory demyelinating polyneuropathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (3 evaluations)
Side effects
fluid retention (edema)
Total evaluations
3
Treatment name(s)

(Neurontin)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic inflammatory demyelinating polyneuropathy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has chronic inflammatory demyelinating polyneuropathy on PatientsLikeMe?

  • 1 new patients joined this month
  • 444 say CIDP is their primary condition

Age
Age Proportion # of patients
<20 1
20s 10
30s 27
40s 63
50s 109
60s 187
70+ 169
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 20
30-39 years 26
40-49 years 53
50-59 years 50
60-69 years 31
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 222
Female 339

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 233
Not Diagnosed 13

These charts show data from CIDP patients who have completed their condition history
Last updated: