What is cluster headaches?

A primary headache disorder characterized by severe one-sided pain in and around the eyes and/or temples. They can last from 15 minutes to many hours occurring 1 to 8 times a day. They are often associated with conjunctivitis, teary eyes, nasal congestion, facial sweating, and eyelid edema.

How do members experience cluster headaches?

Top 5 symptoms reported by people with cluster headaches*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for cluster headaches*

*Data from patients with cluster headaches, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with cluster headaches*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Topamax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
cluster headaches (4)

*Data from patients with cluster headaches, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has cluster headaches on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 57
30s 216
40s 410
50s 444
60s 274
70+ 101

Distribution of sex

Sex

Sex Proportion # of patients
Male 461
Female 1,017

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What is cluster headaches?

A primary headache disorder characterized by severe one-sided pain in and around the eyes and/or temples. They can last from 15 minutes to many hours occurring 1 to 8 times a day. They are often associated with conjunctivitis, teary eyes, nasal congestion, facial sweating, and eyelid edema.



Common symptoms reported by people with cluster headaches

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for cluster headaches

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
389
Tried for
cluster headaches (4)

Data from patients with cluster headaches, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with cluster headaches

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Topamax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
cluster headaches (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with cluster headaches, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has cluster headaches on PatientsLikeMe?

  • 4 new patients joined this month
  • 771 say cluster headaches is their primary condition

Age
Age Proportion # of patients
<20 2
20s 57
30s 216
40s 410
50s 444
60s 274
70+ 101
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 200
20-29 years 186
30-39 years 106
40-49 years 87
50-59 years 24
60-69 years 2
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 461
Female 1,017

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 645
Not Diagnosed 100

These charts show data from cluster headaches patients who have completed their condition history
Last updated: