What is complex regional pain syndrome type I?

Complex regional pain syndrome (CRPS) is a chronic progressive disease characterized by severe pain, swelling and changes in the skin. CRPS Type I, formerly known as reflex sympathetic dystrophy, Sudeck's atrophy, reflex neurovascular dystrophy or algoneurodystrophy, does not have nerve involvement.

How do members experience complex regional pain syndrome type I?

Top 5 symptoms reported by people with complex regional pain syndrome type I*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for complex regional pain syndrome type I*

*Data from patients with complex regional pain syndrome type I, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with complex regional pain syndrome type I*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
complex regional pain syndrome type I (6)
Treatment

(Outpatient PT)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
complex regional pain syndrome type I (2)
Treatment

(Lyrica)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
complex regional pain syndrome type I (2)
Treatment

(Pamelor)
Perceived effectiveness
for complex regional pain syndrome type I (1 evaluation)
Side effects
Total evaluations
1
Tried for
complex regional pain syndrome type I (1)

*Data from patients with complex regional pain syndrome type I, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has complex regional pain syndrome type I on PatientsLikeMe?

Age

Age Proportion # of patients
<20 9
20s 44
30s 83
40s 184
50s 275
60s 254
70+ 119

Distribution of sex

Sex

Sex Proportion # of patients
Male 162
Female 791

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What is complex regional pain syndrome type I?

Complex regional pain syndrome (CRPS) is a chronic progressive disease characterized by severe pain, swelling and changes in the skin. CRPS Type I, formerly known as reflex sympathetic dystrophy, Sudeck's atrophy, reflex neurovascular dystrophy or algoneurodystrophy, does not have nerve involvement.



Common symptoms reported by people with complex regional pain syndrome type I

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for complex regional pain syndrome type I

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
10
Treatment name(s)

(Outpatient PT)
Type
Physical Therapy
How many have tried
388
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
269
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
81

Data from patients with complex regional pain syndrome type I, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with complex regional pain syndrome type I

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Outpatient PT)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Lyrica)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Pamelor)
Perceived effectiveness
for complex regional pain syndrome type I (1 evaluation)
Side effects
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with complex regional pain syndrome type I, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has complex regional pain syndrome type I on PatientsLikeMe?

  • 4 new patients joined this month
  • 598 say CRPS type I is their primary condition

Age
Age Proportion # of patients
<20 9
20s 44
30s 83
40s 184
50s 275
60s 254
70+ 119
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 54
20-29 years 71
30-39 years 91
40-49 years 90
50-59 years 39
60-69 years 8
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 162
Female 791

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 417
Not Diagnosed 30

These charts show data from CRPS type I patients who have completed their condition history
Last updated: