What is common variable immune deficiency?

Common variable immune deficiency (CVID) is a primary immunodeficiency, a disorder in which part of the body's immune system is missing or does not function properly. CVID is believed to be a genetically determined primary immune defect; however, the underlying causes are different.

How do members experience common variable immune deficiency?

Top 5 symptoms reported by people with common variable immune deficiency*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for common variable immune deficiency*

*Data from patients with common variable immune deficiency, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with common variable immune deficiency*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Gammaglobulin (IVIg))
Perceived effectiveness
for common variable immune deficiency (2 evaluations)
Side effects
Total evaluations
2
Tried for
common variable immune deficiency (4)

*Data from patients with common variable immune deficiency, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has common variable immune deficiency on PatientsLikeMe?

Age

Age Proportion # of patients
<20 4
20s 23
30s 38
40s 87
50s 142
60s 144
70+ 87

Distribution of sex

Sex

Sex Proportion # of patients
Male 100
Female 429

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What is common variable immune deficiency?

Common variable immune deficiency (CVID) is a primary immunodeficiency, a disorder in which part of the body's immune system is missing or does not function properly. CVID is believed to be a genetically determined primary immune defect; however, the underlying causes are different.



Common symptoms reported by people with common variable immune deficiency

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for common variable immune deficiency

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
213

Data from patients with common variable immune deficiency, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with common variable immune deficiency

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for common variable immune deficiency (2 evaluations)
Side effects
Total evaluations
2
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with common variable immune deficiency, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has common variable immune deficiency on PatientsLikeMe?

  • 0 new patients joined this month
  • 387 say common variable immune deficiency is their primary condition

Age
Age Proportion # of patients
<20 4
20s 23
30s 38
40s 87
50s 142
60s 144
70+ 87
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 70
20-29 years 27
30-39 years 34
40-49 years 25
50-59 years 20
60-69 years 4
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 100
Female 429

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 231
Not Diagnosed 7

These charts show data from common variable immune deficiency patients who have completed their condition history
Last updated: