What is diabetes insipidus?

Diabetes insipidus, also called central diabetes insipidus, is caused by decreased secretion of antidiuretic hormone from the pituitary gland and is characterized by excessive volumes of urine that is diluted in appearance and excessive thirst.

How do members experience diabetes insipidus?

Top 5 symptoms reported by people with diabetes insipidus*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for diabetes insipidus*

*Data from patients with diabetes insipidus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with diabetes insipidus*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(DDAVP)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
diabetes insipidus (1)

*Data from patients with diabetes insipidus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has diabetes insipidus on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 22
30s 45
40s 58
50s 102
60s 145
70+ 99

Distribution of sex

Sex

Sex Proportion # of patients
Male 180
Female 297

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What is diabetes insipidus?

Diabetes insipidus, also called central diabetes insipidus, is caused by decreased secretion of antidiuretic hormone from the pituitary gland and is characterized by excessive volumes of urine that is diluted in appearance and excessive thirst.



Common symptoms reported by people with diabetes insipidus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for diabetes insipidus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(DDAVP)
Type
Prescription Drug
How many have tried
92
Tried for
diabetes insipidus (1)

Data from patients with diabetes insipidus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with diabetes insipidus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(DDAVP)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
diabetes insipidus (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with diabetes insipidus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has diabetes insipidus on PatientsLikeMe?

  • 1 new patients joined this month
  • 350 say diabetes insipidus is their primary condition

Age
Age Proportion # of patients
<20 3
20s 22
30s 45
40s 58
50s 102
60s 145
70+ 99
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 23
20-29 years 16
30-39 years 28
40-49 years 30
50-59 years 21
60-69 years 4
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 180
Female 297

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 187
Not Diagnosed 21

These charts show data from diabetes insipidus patients who have completed their condition history
Last updated: