What is early onset dementia?

Early onset dementia is the term used when Alzheimer's disease is diagnosed before the age of 65. Approximately half of the cases of early onset Alzheimer's disease are Familial Alzheimer's disease, where a genetic predisposition leads to the disease.

How do members experience early onset dementia?

Top 5 symptoms reported by people with early onset dementia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for early onset dementia*

*Data from patients with early onset dementia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with early onset dementia*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Aricept)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
early onset dementia (1)
Treatment

(Namenda)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
early onset dementia (1)

*Data from patients with early onset dementia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has early onset dementia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 10
30s 25
40s 21
50s 55
60s 78
70+ 113

Distribution of sex

Sex

Sex Proportion # of patients
Male 109
Female 172

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is early onset dementia?

Early onset dementia is the term used when Alzheimer's disease is diagnosed before the age of 65. Approximately half of the cases of early onset Alzheimer's disease are Familial Alzheimer's disease, where a genetic predisposition leads to the disease.



Common symptoms reported by people with early onset dementia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for early onset dementia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Aricept)
Type
Prescription Drug
How many have tried
49
Tried for
early onset dementia (1)
Treatment name(s)

(Namenda)
Type
Prescription Drug
How many have tried
20
Tried for
early onset dementia (1)

Data from patients with early onset dementia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with early onset dementia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Aricept)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
early onset dementia (1)
Treatment name(s)

(Namenda)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
early onset dementia (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with early onset dementia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has early onset dementia on PatientsLikeMe?

  • 2 new patients joined this month
  • 197 say early onset dementia is their primary condition

Age
Age Proportion # of patients
<20 1
20s 10
30s 25
40s 21
50s 55
60s 78
70+ 113
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 7
30-39 years 11
40-49 years 14
50-59 years 25
60-69 years 9
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 109
Female 172

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 65
Not Diagnosed 22

These charts show data from early onset dementia patients who have completed their condition history
Last updated: