What is endometriosis?

Endometriosis is a condition in which the tissue that behaves like the cells lining the uterus (endometrium) grows in other areas of the body. The tissue growth typically occurs in the pelvic area, outside of the uterus, on the ovaries, bowel, rectum, bladder, and the delicate lining of the pelvis.

How do members experience endometriosis?

Top 5 symptoms reported by people with endometriosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for endometriosis*

*Data from patients with endometriosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with endometriosis*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
endometriosis (2)
Treatment

(Seasonique)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
endometriosis (2)
Treatment

(Lo Loestrin FE)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
endometriosis (2)
Treatment

(Abdominal hysterectomy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
endometriosis (1)
Treatment

(Ibuprofen Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
endometriosis (1)

*Data from patients with endometriosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has endometriosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 17
20s 222
30s 622
40s 873
50s 644
60s 175
70+ 49

Distribution of sex

Sex

Sex Proportion # of patients
Male 20
Female 2,552

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What is endometriosis?

Endometriosis is a condition in which the tissue that behaves like the cells lining the uterus (endometrium) grows in other areas of the body. The tissue growth typically occurs in the pelvic area, outside of the uterus, on the ovaries, bowel, rectum, bladder, and the delicate lining of the pelvis.



Common symptoms reported by people with endometriosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for endometriosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Apri)
Type
Prescription Drug
How many have tried
73
Tried for
endometriosis (2)
Treatment name(s)

(Seasonique)
Type
Prescription Drug
How many have tried
171
Tried for
endometriosis (2)
Treatment name(s)

(Lo Loestrin FE)
Type
Prescription Drug
How many have tried
216
Tried for
endometriosis (2)
Treatment name(s)

(Abdominal hysterectomy)
Type
Surgery
How many have tried
297
Tried for
endometriosis (1)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
801
Tried for
endometriosis (1)

Data from patients with endometriosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with endometriosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Apri)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
endometriosis (2)
Treatment name(s)

(Seasonique)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
endometriosis (2)
Treatment name(s)

(Lo Loestrin FE)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
endometriosis (2)
Treatment name(s)

(Abdominal hysterectomy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
endometriosis (1)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
endometriosis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with endometriosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has endometriosis on PatientsLikeMe?

  • 11 new patients joined this month
  • 862 say endometriosis is their primary condition

Age
Age Proportion # of patients
<20 17
20s 222
30s 622
40s 873
50s 644
60s 175
70+ 49
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 732
20-29 years 371
30-39 years 137
40-49 years 36
50-59 years 4
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 20
Female 2,552

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,700
Not Diagnosed 116

These charts show data from endometriosis patients who have completed their condition history
Last updated: