What is essential thrombocythemia?

Essential thrombocythemia is a rare blood disorder characterized by an increased platelet count in the blood due to overproduction of platelets in the bone marrow. For this reason it is considered a myeloproliferative disorder.

How do members experience essential thrombocythemia?

Top 5 symptoms reported by people with essential thrombocythemia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for essential thrombocythemia*

*Data from patients with essential thrombocythemia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with essential thrombocythemia*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Aspirin Low Dose)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
essential thrombocythemia (2)
Treatment

(Hydrea)
Perceived effectiveness
for essential thrombocythemia (1 evaluation)
Side effects
Total evaluations
1
Tried for
essential thrombocythemia (1)

*Data from patients with essential thrombocythemia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has essential thrombocythemia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 4
30s 24
40s 40
50s 46
60s 65
70+ 85

Distribution of sex

Sex

Sex Proportion # of patients
Male 59
Female 208

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What is essential thrombocythemia?

Essential thrombocythemia is a rare blood disorder characterized by an increased platelet count in the blood due to overproduction of platelets in the bone marrow. For this reason it is considered a myeloproliferative disorder.



Common symptoms reported by people with essential thrombocythemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for essential thrombocythemia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Aspirin Low Dose)
Type
Over the Counter Drug
How many have tried
159
Treatment name(s)

(Hydrea)
Type
Prescription Drug
How many have tried
108

Data from patients with essential thrombocythemia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with essential thrombocythemia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Aspirin Low Dose)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Hydrea)
Perceived effectiveness
for essential thrombocythemia (1 evaluation)
Side effects
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with essential thrombocythemia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has essential thrombocythemia on PatientsLikeMe?

  • 1 new patients joined this month
  • 226 say essential thrombocythemia is their primary condition

Age
Age Proportion # of patients
<20 1
20s 4
30s 24
40s 40
50s 46
60s 65
70+ 85
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 15
30-39 years 12
40-49 years 14
50-59 years 8
60-69 years 4
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 59
Female 208

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 94
Not Diagnosed 1

These charts show data from essential thrombocythemia patients who have completed their condition history
Last updated: