What is familial hypercholesterolemia?

Familial hypercholesterolemia is a type of high cholesterol caused by a genetic defect that impairs the body's ability to effectively clear cholesterol from the blood. As a result, cholesterol levels may be very high, increasing the risk for developing cardiovascular disease at an earlier age.

How do members experience familial hypercholesterolemia?

Top 5 symptoms reported by people with familial hypercholesterolemia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for familial hypercholesterolemia*

*Data from patients with familial hypercholesterolemia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with familial hypercholesterolemia*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Praluent)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
familial hypercholesterolemia (1)

*Data from patients with familial hypercholesterolemia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has familial hypercholesterolemia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 3
30s 17
40s 22
50s 18
60s 19
70+ 16

Distribution of sex

Sex

Sex Proportion # of patients
Male 27
Female 67

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is familial hypercholesterolemia?

Familial hypercholesterolemia is a type of high cholesterol caused by a genetic defect that impairs the body's ability to effectively clear cholesterol from the blood. As a result, cholesterol levels may be very high, increasing the risk for developing cardiovascular disease at an earlier age.



Common symptoms reported by people with familial hypercholesterolemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for familial hypercholesterolemia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Praluent)
Type
Prescription Drug
How many have tried
0

Data from patients with familial hypercholesterolemia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with familial hypercholesterolemia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Praluent)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with familial hypercholesterolemia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has familial hypercholesterolemia on PatientsLikeMe?

  • 3 new patients joined this month
  • 45 say familial hypercholesterolemia is their primary condition

Age
Age Proportion # of patients
<20 2
20s 3
30s 17
40s 22
50s 18
60s 19
70+ 16
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 2
30-39 years 3
40-49 years 0
50-59 years 2
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 27
Female 67

Types
Condition Types Proportion # of patients
Heterozygous familial hypercholesterolemia 2
Homozygous familial hypercholesterolemia 2
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 27
Not Diagnosed 2

These charts show data from familial hypercholesterolemia patients who have completed their condition history
Last updated: