What is hemicrania continua?

Hemicrania continua is a persistent one-sided headache that is usually unremitting. Hemicrania continua is considered a primary headache disorder, meaning that it's not caused by another condition.

How do members experience hemicrania continua?

Top 5 symptoms reported by people with hemicrania continua*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for hemicrania continua*

*Data from patients with hemicrania continua, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with hemicrania continua*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Indocin)
Perceived effectiveness
for hemicrania continua (1 evaluation)
Side effects
Total evaluations
1
Tried for
hemicrania continua (2)

*Data from patients with hemicrania continua, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has hemicrania continua on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 4
30s 9
40s 20
50s 24
60s 19
70+ 17

Distribution of sex

Sex

Sex Proportion # of patients
Male 18
Female 76

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What is hemicrania continua?

Hemicrania continua is a persistent one-sided headache that is usually unremitting. Hemicrania continua is considered a primary headache disorder, meaning that it's not caused by another condition.



Common symptoms reported by people with hemicrania continua

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for hemicrania continua

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Indocin)
Type
Prescription Drug
How many have tried
58
Tried for
hemicrania continua (2)

Data from patients with hemicrania continua, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with hemicrania continua

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Indocin)
Perceived effectiveness
for hemicrania continua (1 evaluation)
Side effects
Total evaluations
1
Tried for
hemicrania continua (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hemicrania continua, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has hemicrania continua on PatientsLikeMe?

  • 0 new patients joined this month
  • 75 say hemicrania continua is their primary condition

Age
Age Proportion # of patients
<20 1
20s 4
30s 9
40s 20
50s 24
60s 19
70+ 17
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 9
30-39 years 7
40-49 years 8
50-59 years 2
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 18
Female 76

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33
Not Diagnosed 3

These charts show data from hemicrania continua patients who have completed their condition history
Last updated: