What is hidradenitis suppurativa?

Hidradenitis suppurativa chronic inflammatory skin disorder that primarily affects the underarm, groin, perineum, and area under the breasts. As the disease becomes chronic, ulcers appear, sinus tracts enlarge, fistulas develop, and fibrosis and scarring become evident.

How do members experience hidradenitis suppurativa?

Top 5 symptoms reported by people with hidradenitis suppurativa*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for hidradenitis suppurativa*

*Data from patients with hidradenitis suppurativa, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with hidradenitis suppurativa*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Doxylin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hidradenitis suppurativa (3)
Treatment

(Ibuprofen Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hidradenitis suppurativa (1)
Treatment

(Remicade)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hidradenitis suppurativa (1)
Treatment

(Accutane)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hidradenitis suppurativa (1)

*Data from patients with hidradenitis suppurativa, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has hidradenitis suppurativa on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 44
30s 122
40s 165
50s 125
60s 58
70+ 18

Distribution of sex

Sex

Sex Proportion # of patients
Male 67
Female 467

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What is hidradenitis suppurativa?

Hidradenitis suppurativa chronic inflammatory skin disorder that primarily affects the underarm, groin, perineum, and area under the breasts. As the disease becomes chronic, ulcers appear, sinus tracts enlarge, fistulas develop, and fibrosis and scarring become evident.



Common symptoms reported by people with hidradenitis suppurativa

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for hidradenitis suppurativa

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Doxylin)
Type
Prescription Drug
How many have tried
109
Tried for
hidradenitis suppurativa (3)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
147
Tried for
hidradenitis suppurativa (1)
Treatment name(s)

(Remicade)
Type
Prescription Drug
How many have tried
14
Tried for
hidradenitis suppurativa (1)
Treatment name(s)

(Accutane)
Type
Prescription Drug
How many have tried
26
Tried for
hidradenitis suppurativa (1)

Data from patients with hidradenitis suppurativa, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with hidradenitis suppurativa

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Doxylin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hidradenitis suppurativa (3)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hidradenitis suppurativa (1)
Treatment name(s)

(Remicade)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hidradenitis suppurativa (1)
Treatment name(s)

(Accutane)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hidradenitis suppurativa (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hidradenitis suppurativa, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has hidradenitis suppurativa on PatientsLikeMe?

  • 2 new patients joined this month
  • 253 say hidradenitis suppurativa is their primary condition

Age
Age Proportion # of patients
<20 3
20s 44
30s 122
40s 165
50s 125
60s 58
70+ 18
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 100
20-29 years 65
30-39 years 34
40-49 years 19
50-59 years 3
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 67
Female 467

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 246
Not Diagnosed 22

These charts show data from hidradenitis suppurativa patients who have completed their condition history
Last updated: