What is human immunodeficiency virus (HIV)?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.

How do members experience human immunodeficiency virus (HIV)?

Top 5 symptoms reported by people with human immunodeficiency virus (HIV)*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for human immunodeficiency virus (HIV)*

*Data from patients with human immunodeficiency virus (HIV), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with human immunodeficiency virus (HIV)*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for human immunodeficiency virus (HIV) (5 evaluations)
Side effects
calcified tendon
Total evaluations
5
Tried for
human immunodeficiency virus (HIV) (13)
Treatment

(Tivicay)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
human immunodeficiency virus (HIV) (4)
Perceived effectiveness
for human immunodeficiency virus (HIV) (1 evaluation)
Side effects
Total evaluations
1
Tried for
human immunodeficiency virus (HIV) (2)
Perceived effectiveness
for human immunodeficiency virus (HIV) (1 evaluation)
Side effects
Total evaluations
1
Tried for
human immunodeficiency virus (HIV) (1)
Perceived effectiveness
for human immunodeficiency virus (HIV) (1 evaluation)
Side effects
Total evaluations
1
Tried for
human immunodeficiency virus (HIV) (1)

*Data from patients with human immunodeficiency virus (HIV), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has human immunodeficiency virus (HIV) on PatientsLikeMe?

Age

Age Proportion # of patients
<20 11
20s 99
30s 416
40s 799
50s 888
60s 735
70+ 265

Distribution of sex

Sex

Sex Proportion # of patients
Male 2,302
Female 881

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How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is human immunodeficiency virus (HIV)?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV specifically attacks CD4 cells, which are part of the body's immune system. With treatment, often called antiretroviral therapy (ART), HIV infection can be well-controlled.



Common symptoms reported by people with human immunodeficiency virus (HIV)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for human immunodeficiency virus (HIV)

Treatment name(s)
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
15
Treatment name(s)

(Tivicay)
Type
Prescription Drug
How many have tried
20
Type
Prescription Drug
How many have tried
2
Type
Prescription Drug
How many have tried
11
Type
Prescription Drug
How many have tried
0

Data from patients with human immunodeficiency virus (HIV), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with human immunodeficiency virus (HIV)

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for human immunodeficiency virus (HIV) (5 evaluations)
Side effects
calcified tendon
Total evaluations
5
Treatment name(s)

(Tivicay)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Perceived effectiveness
for human immunodeficiency virus (HIV) (1 evaluation)
Side effects
Total evaluations
1
Perceived effectiveness
for human immunodeficiency virus (HIV) (1 evaluation)
Side effects
Total evaluations
1
Perceived effectiveness
for human immunodeficiency virus (HIV) (1 evaluation)
Side effects
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with human immunodeficiency virus (HIV), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has human immunodeficiency virus (HIV) on PatientsLikeMe?

  • 2 new patients joined this month
  • 4,116 say HIV is their primary condition

Age
Age Proportion # of patients
<20 11
20s 99
30s 416
40s 799
50s 888
60s 735
70+ 265
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 28
20-29 years 217
30-39 years 214
40-49 years 100
50-59 years 36
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2,302
Female 881

Types
Condition Types Proportion # of patients
HIV-1: Group M: CRF 108
HIV-1: Group M: Type A1 245
HIV-1: Group M: Type A2 19
HIV-1: Group M: Type A3 2
HIV-1: Group M: Type A4 4
HIV-1: Group M: Type A6 1
HIV-1: Group M: Type B 118
HIV-1: Group M: Type C 15
HIV-1: Group M: Type D 9
HIV-1: Group M: Type F1 11
HIV-1: Group M: Type F2 5
HIV-1: Group M: Type G 6
HIV-1: Group M: Type H 5
HIV-1: Group M: Type J 1
HIV-1: Group M: Type K 2
HIV-1: Group N 6
HIV-1: Group O 35
HIV-1: Group P 1
HIV-2 30
HIV subtype not listed 10
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,200
Not Diagnosed 46

These charts show data from HIV patients who have completed their condition history
Last updated: