What is interstitial cystitis?

Interstitial cystitis, also known as painful bladder syndrome, is a non-infectious condition with recurring discomfort or pain in the urinary bladder and the surrounding pelvic region without an identifiable disease.

How do members experience interstitial cystitis?

Top 5 symptoms reported by people with interstitial cystitis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for interstitial cystitis*

*Data from patients with interstitial cystitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with interstitial cystitis*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
interstitial cystitis (1)

*Data from patients with interstitial cystitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has interstitial cystitis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 67
30s 197
40s 383
50s 463
60s 356
70+ 174

Distribution of sex

Sex

Sex Proportion # of patients
Male 74
Female 1,550

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What is interstitial cystitis?

Interstitial cystitis, also known as painful bladder syndrome, is a non-infectious condition with recurring discomfort or pain in the urinary bladder and the surrounding pelvic region without an identifiable disease.



Common symptoms reported by people with interstitial cystitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for interstitial cystitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
233
Tried for
interstitial cystitis (1)

Data from patients with interstitial cystitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with interstitial cystitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
interstitial cystitis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with interstitial cystitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has interstitial cystitis on PatientsLikeMe?

  • 2 new patients joined this month
  • 602 say interstitial cystitis is their primary condition

Age
Age Proportion # of patients
<20 1
20s 67
30s 197
40s 383
50s 463
60s 356
70+ 174
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 146
20-29 years 184
30-39 years 171
40-49 years 134
50-59 years 50
60-69 years 16
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 74
Female 1,550

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 845
Not Diagnosed 46

These charts show data from interstitial cystitis patients who have completed their condition history
Last updated: