What is interstitial lung disease?

Interstitial lung disease is the name for a large group of diseases that inflame or scar the lungs. The inflammation and scarring make it hard to get enough oxygen. The scarring is called pulmonary fibrosis. Some types of interstitial lung disease have no known cause.

How do members experience interstitial lung disease?

Top 5 symptoms reported by people with interstitial lung disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for interstitial lung disease*

*Data from patients with interstitial lung disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with interstitial lung disease*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Prednisone Intensol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
interstitial lung disease (2)

*Data from patients with interstitial lung disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has interstitial lung disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 4
20s 11
30s 24
40s 73
50s 132
60s 200
70+ 262

Distribution of sex

Sex

Sex Proportion # of patients
Male 184
Female 514

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What is interstitial lung disease?

Interstitial lung disease is the name for a large group of diseases that inflame or scar the lungs. The inflammation and scarring make it hard to get enough oxygen. The scarring is called pulmonary fibrosis. Some types of interstitial lung disease have no known cause.



Common symptoms reported by people with interstitial lung disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for interstitial lung disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
345

Data from patients with interstitial lung disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with interstitial lung disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with interstitial lung disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has interstitial lung disease on PatientsLikeMe?

  • 1 new patients joined this month
  • 466 say interstitial lung disease is their primary condition

Age
Age Proportion # of patients
<20 4
20s 11
30s 24
40s 73
50s 132
60s 200
70+ 262
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 8
30-39 years 28
40-49 years 47
50-59 years 47
60-69 years 34
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 184
Female 514

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 255
Not Diagnosed 7

These charts show data from interstitial lung disease patients who have completed their condition history
Last updated: