What is Lewy body disease?

Dementia with Lewy bodies is characterized by cognitive decline, recurrent visual hallucinations, postural instability, gait difficulties, masked facial expression, rapid eye movement sleep behavioral disorder, and antipsychotic sensitivity.

How do members experience Lewy body disease?

Top 5 symptoms reported by people with Lewy body disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Lewy body disease*

*Data from patients with Lewy body disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with Lewy body disease*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Seroquel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Lewy body disease (1)

*Data from patients with Lewy body disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has Lewy body disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 1
40s 4
50s 9
60s 29
70+ 79

Distribution of sex

Sex

Sex Proportion # of patients
Male 72
Female 45

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What is Lewy body disease?

Dementia with Lewy bodies is characterized by cognitive decline, recurrent visual hallucinations, postural instability, gait difficulties, masked facial expression, rapid eye movement sleep behavioral disorder, and antipsychotic sensitivity.



Common symptoms reported by people with Lewy body disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Lewy body disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Seroquel)
Type
Prescription Drug
How many have tried
10
Tried for
Lewy body disease (1)

Data from patients with Lewy body disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with Lewy body disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Seroquel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Lewy body disease (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Lewy body disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has Lewy body disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 106 say Lewy body disease is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 1
40s 4
50s 9
60s 29
70+ 79
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 1
40-49 years 3
50-59 years 8
60-69 years 7
70+ years 4

Distribution of sex

Sex
Sex Proportion # of patients
Male 72
Female 45

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 25
Not Diagnosed 4

These charts show data from Lewy body disease patients who have completed their condition history
Last updated: