What is lichen planopilaris?

Lichen planopilaris is a form of hair loss which involves scarring, a follicular form of lichen planus, and is considered to have an autoimmune cause.

How do members experience lichen planopilaris?

Top 5 symptoms reported by people with lichen planopilaris*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for lichen planopilaris*

*Data from patients with lichen planopilaris, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with lichen planopilaris*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Betnovate)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
lichen planopilaris (1)

*Data from patients with lichen planopilaris, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has lichen planopilaris on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 2
30s 8
40s 17
50s 28
60s 27
70+ 24

Distribution of sex

Sex

Sex Proportion # of patients
Male 14
Female 95

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What is lichen planopilaris?

Lichen planopilaris is a form of hair loss which involves scarring, a follicular form of lichen planus, and is considered to have an autoimmune cause.



Common symptoms reported by people with lichen planopilaris

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for lichen planopilaris

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Betnovate)
Type
Prescription Drug
How many have tried
9
Tried for
lichen planopilaris (1)

Data from patients with lichen planopilaris, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with lichen planopilaris

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Betnovate)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
lichen planopilaris (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with lichen planopilaris, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has lichen planopilaris on PatientsLikeMe?

  • 1 new patients joined this month
  • 105 say lichen planopilaris is their primary condition

Age
Age Proportion # of patients
<20 0
20s 2
30s 8
40s 17
50s 28
60s 27
70+ 24
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 4
30-39 years 7
40-49 years 6
50-59 years 4
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 14
Female 95

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 25
Not Diagnosed 1

These charts show data from lichen planopilaris patients who have completed their condition history
Last updated: