What is Lyme disease?

Lyme Disease is caused by Borrelia burgdorferi. Early manifestations of infection may include fever, headache, fatigue, depression, and a characteristic skin rash called erythema migrans. Left untreated, late manifestations involving the joints, heart, and nervous system can occur.

How do members experience Lyme disease?

Top 5 symptoms reported by people with Lyme disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Lyme disease*

*Data from patients with Lyme disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with Lyme disease*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Doxylin)
Perceived effectiveness
for Lyme disease (1 evaluation)
Side effects
Total evaluations
1
Tried for
Lyme disease (5)

*Data from patients with Lyme disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has Lyme disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 4
20s 93
30s 243
40s 361
50s 476
60s 465
70+ 249

Distribution of sex

Sex

Sex Proportion # of patients
Male 388
Female 1,519

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  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is Lyme disease?

Lyme Disease is caused by Borrelia burgdorferi. Early manifestations of infection may include fever, headache, fatigue, depression, and a characteristic skin rash called erythema migrans. Left untreated, late manifestations involving the joints, heart, and nervous system can occur.



Common symptoms reported by people with Lyme disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Lyme disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Doxylin)
Type
Prescription Drug
How many have tried
744
Tried for
Lyme disease (5)

Data from patients with Lyme disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with Lyme disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Doxylin)
Perceived effectiveness
for Lyme disease (1 evaluation)
Side effects
Total evaluations
1
Tried for
Lyme disease (5)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Lyme disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has Lyme disease on PatientsLikeMe?

  • 1 new patients joined this month
  • 1,390 say Lyme disease is their primary condition

Age
Age Proportion # of patients
<20 4
20s 93
30s 243
40s 361
50s 476
60s 465
70+ 249
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 137
20-29 years 128
30-39 years 162
40-49 years 141
50-59 years 87
60-69 years 20
70+ years 5

Distribution of sex

Sex
Sex Proportion # of patients
Male 388
Female 1,519

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 771
Not Diagnosed 83

These charts show data from Lyme disease patients who have completed their condition history
Last updated: