What is cutaneous T-cell lymphoma?

Cutaneous (skin) T-cell lymphomas are a group of non-Hodgkin's lymphomas primarily involving the skin and eventually involve lymph nodes, blood and other organs. Mycosis fungoides and Sezary's disease are the most common types of cutaneous T-cell lymphomas.

How do members experience cutaneous T-cell lymphoma?

Top 5 symptoms reported by people with cutaneous T-cell lymphoma*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for cutaneous T-cell lymphoma*

*Data from patients with cutaneous T-cell lymphoma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with cutaneous T-cell lymphoma*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for cutaneous T-cell lymphoma (1 evaluation)
Side effects
skin pain
Total evaluations
1
Tried for
cutaneous T-cell lymphoma (2)

*Data from patients with cutaneous T-cell lymphoma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has cutaneous T-cell lymphoma on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 7
30s 22
40s 38
50s 62
60s 86
70+ 163

Distribution of sex

Sex

Sex Proportion # of patients
Male 147
Female 238

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What is cutaneous T-cell lymphoma?

Cutaneous (skin) T-cell lymphomas are a group of non-Hodgkin's lymphomas primarily involving the skin and eventually involve lymph nodes, blood and other organs. Mycosis fungoides and Sezary's disease are the most common types of cutaneous T-cell lymphomas.



Common symptoms reported by people with cutaneous T-cell lymphoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for cutaneous T-cell lymphoma

Treatment name(s)
Type
How many have tried
Tried for
Type
Procedures
How many have tried
144

Data from patients with cutaneous T-cell lymphoma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with cutaneous T-cell lymphoma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for cutaneous T-cell lymphoma (1 evaluation)
Side effects
skin pain
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with cutaneous T-cell lymphoma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has cutaneous T-cell lymphoma on PatientsLikeMe?

  • 0 new patients joined this month
  • 392 say cutaneous T-cell lymphoma is their primary condition

Age
Age Proportion # of patients
<20 1
20s 7
30s 22
40s 38
50s 62
60s 86
70+ 163
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 11
30-39 years 15
40-49 years 32
50-59 years 19
60-69 years 13
70+ years 4

Distribution of sex

Sex
Sex Proportion # of patients
Male 147
Female 238

Types
Condition Types Proportion # of patients
Mycosis fungoides 264
Sézary syndrome 21
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 251
Not Diagnosed 25

These charts show data from cutaneous T-cell lymphoma patients who have completed their condition history
Last updated: