What is papilledema?

Papilledema is swelling of the optic disc that is due to elevated pressure inside the skull (intracranial). The swelling usually affects both eyes.

How do members experience papilledema?

Top 5 symptoms reported by people with papilledema*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for papilledema*

*Data from patients with papilledema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with papilledema*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Diamox)
Perceived effectiveness
for papilledema (3 evaluations)
Side effects
Total evaluations
3
Tried for
papilledema (4)

*Data from patients with papilledema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has papilledema on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 8
30s 19
40s 9
50s 14
60s 7
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 4
Female 54

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What is papilledema?

Papilledema is swelling of the optic disc that is due to elevated pressure inside the skull (intracranial). The swelling usually affects both eyes.



Common symptoms reported by people with papilledema

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for papilledema

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Diamox)
Type
Prescription Drug
How many have tried
20
Tried for
papilledema (4)

Data from patients with papilledema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with papilledema

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Diamox)
Perceived effectiveness
for papilledema (3 evaluations)
Side effects
Total evaluations
3
Tried for
papilledema (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with papilledema, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has papilledema on PatientsLikeMe?

  • 0 new patients joined this month
  • 13 say papilledema is their primary condition

Age
Age Proportion # of patients
<20 1
20s 8
30s 19
40s 9
50s 14
60s 7
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 7
30-39 years 6
40-49 years 5
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 54

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 30
Not Diagnosed 1

These charts show data from papilledema patients who have completed their condition history
Last updated: