What is primary biliary cholangitis?

Primary biliary cholangitis (PBC), previously referred to as primary biliary cirrhosis, is a chronic disease of the small intrahepatic bile ducts that is characterized by progressive bile duct damage and eventual loss.

How do members experience primary biliary cholangitis?

Top 5 symptoms reported by people with primary biliary cholangitis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for primary biliary cholangitis*

*Data from patients with primary biliary cholangitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with primary biliary cholangitis*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(UDCA Ursodeoxycholic acid)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
primary biliary cholangitis (1)

*Data from patients with primary biliary cholangitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has primary biliary cholangitis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 5
30s 17
40s 25
50s 72
60s 90
70+ 81

Distribution of sex

Sex

Sex Proportion # of patients
Male 34
Female 258

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What is primary biliary cholangitis?

Primary biliary cholangitis (PBC), previously referred to as primary biliary cirrhosis, is a chronic disease of the small intrahepatic bile ducts that is characterized by progressive bile duct damage and eventual loss.



Common symptoms reported by people with primary biliary cholangitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for primary biliary cholangitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(UDCA Ursodeoxycholic acid)
Type
Prescription Drug
How many have tried
146

Data from patients with primary biliary cholangitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with primary biliary cholangitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(UDCA Ursodeoxycholic acid)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with primary biliary cholangitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has primary biliary cholangitis on PatientsLikeMe?

  • 0 new patients joined this month
  • 185 say primary biliary cholangitis is their primary condition

Age
Age Proportion # of patients
<20 0
20s 5
30s 17
40s 25
50s 72
60s 90
70+ 81
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 8
30-39 years 29
40-49 years 39
50-59 years 20
60-69 years 6
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 34
Female 258

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 138
Not Diagnosed 8

These charts show data from primary biliary cholangitis patients who have completed their condition history
Last updated: