What is primary biliary cholangitis?
Primary biliary cholangitis (PBC), previously referred to as primary biliary cirrhosis, is a chronic disease of the small intrahepatic bile ducts that is characterized by progressive bile duct damage and eventual loss.
How do members experience primary biliary cholangitis?
Top 5 symptoms reported by people with primary biliary cholangitis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Itchy at night (nocturnal pruritis)
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Abdominal pain
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for primary biliary cholangitis*
Treatment
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
146
Tried for
primary biliary cholangitis
(1)
*Data from patients with primary biliary cholangitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Compare treatments taken by people with primary biliary cholangitis*
Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
primary biliary cholangitis
(1)
*Data from patients with primary biliary cholangitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Who has primary biliary cholangitis on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 5 | |
| 30s | 17 | |
| 40s | 25 | |
| 50s | 72 | |
| 60s | 90 | |
| 70+ | 81 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 34 | |
| Female | 258 |